On Saturday, October 04, the National Alliance for Autism Research is holding its annual fundraiser, Walk F.A.R. for N.A.A.R., in Forest Park. (See this page for more details.)

Justin and I talked about it, and we decided to form a team - Team Justin - and get involved. As you know, Justin has Asperger’s Syndrome, a disorder that falls on the Autism spectrum. He’s becoming more cognizant of the fact that most other children in his classroom do not have a “team” of teachers, or all those extra “classes” such as speech therapy, occupational therapy, and extra help in the resource room.

Now our goal is to pull together a team of walkers and try to raise some money!

Did you know that Autism and Asperger’s Syndrome have been recognized worldwide since the 1940’s? Did you also know that only in the last decade has any serious research begun on the disorder? Although Autism and the spectrum disorders are more pervasive than Multiple Sclerosis, Cystic Fibrosis, or Downs Syndrome, autism research receives less than 5% of the funding that nonprofit, disease-based research organizations for these other disorders do?

Please consider walking for Team Justin. The walk is just 1.5 miles and begins at 9am on Saturday, October 04. And then forward this e-mail on to anyone else in the area you know might be interested in taking part in this event.

If you would rather just send a tax-deductible donation for Team Justin, you can click the link to left of this entry and use PayPal to make your donation.

If you know of someone else who might want to make a donation to Team Justin, please forward this e-mail to them, whether or not they are in St. Louis.

I’ve included some detailed information on Asperger’s Syndrome below, in case you are unfamiliar with it.

In 1944 Hans Asperger, an Austrian psychiatrist, described an “abnormality of personality” that he called autistic psycopathy. This term has since been replaced by Asperger’s Syndrome. Asperger’s work was not translated into English until the early ’70s, so it was not widely known in the English speaking countries. Even after his work was translated, it was not until the late ’80s that Asperger’s Syndrome was diagnosed in much of North America.

DESCRIPTION

Asperger’s Syndrome is more common in boys than in girls. It is not usually recognized before the age or three or even later. Asperger himself defined the syndrome using the categories below.

Speech: Children with Asperger’s Syndrome generally talk at the age expected of typical children. Grammar is acquired at a typical age or a bit later; however there may be a tendency to use “you” or “he/she” instead of “I”. In general the form of language is typical but the content is not. Children may talk at length about a favourite subject or repeat a word or phrase over and over again.

Non-verbal communication: People with Asperger’s Syndrome may have few facial expressions apart from anger or misery. Their voice may be monotone and droning or exaggerated. Comprehension of the facial expressions or others is also poor. As well, gestures may be clumsy and exaggerated.

Social Interaction: The rules governing social interaction often pose a mystery to someone with Asperger’s Syndrome. The impairment of two-way interaction is perhaps the most obvious characteristic of the person with the syndrome.

Repetitive Activities and Resistance to Change: Children with Asperger’s Syndrome may spin and watch spinning objects for long periods or time. They often are intensely attached to particular possessions.

Motor Coordination: Gross motor movements are usually clumsy and uncoordinated. About 90% are poor at sports. Some may have difficulty writing and drawing. Asperger also mentioned stereotypic movements of body and limbs as characteristic.

Skills and Interests: Most people with Asperger’s Syndrome have excellent rote memory and become intensely interested in one or two subjects (sometimes to the exclusion of other topics).

Experiences at School: The impairment of social interaction and communication, in particular, work against the child with Asperger’s Syndrome. The children are often targets of teasing and bullying at school. Many will be acutely aware that they are different, and can become over-sensitive to criticism, especially as teens.

Asperger outlined the differences between autism and his syndrome to be:

the child with Asperger’s Syndrome is not so disturbed;

the child is very intelligent;

he or she is endowed with special abilities;

the child first shows symptoms in the third year and;

the child develops highly grammatical speech very early.

Getting involved,

michelle